Rare Voices Australia (RVA) is a national organisation advocating for patients living with a rare disease and their carers. They aim to promote a healthcare policy and system that works for those with a rare disease by working with government, researchers, clinicians and industry groups. RVA also provides information to individuals and links other rare disease support groups and organisations.
In 2015 GSK Australia provided independent restricted grant $15,000 to support the Forgotten Ones photography project. Designed to raise awareness about rare diseases and the broad impact they have, the focus of this campaign was centred on siblings of patients rather than patients themselves.
Rare Voices also received an independent grant of $15,000 to support the development of an implementation strategy for a national plan for rare diseases.